The time I wasted before I was diagnosed.
Not being able to tie my tie.
The loss of being able to spell without a dictionary.
Friends are afraid for me on my journey thinking it's going right away which causes my being over careful in talking.
Unable to remember, having to repeatedly read over lines of interest.
Talking to a new friend and unable to remember his name.
Having to check all thinking first.
Making my corrections when I say what I really meant to say.

Tips on coping

Every day doing one thing that gives me a mental job i.e. reading the sports page, an easy crossword, or a jigsaw puzzle.
Physical exercise i.e. stretching, walking and ballroom dancing.
Remember best as I can for today.
Check my day calendar for times and dates.
To not complain about the little things.
Check my medicines make sure they are used daily.
Thank my caregiver for putting up with me.
Be honest and loving to my spouse.

by Carl

What this Illness has Taught Me

It has taken a while, but this illness has taught me patience.
I've learned there is always someone who has been where you are and even if they can't make it better they offer a compassionate ear and hope.
I've learned that the name of the dementia is not as important as my mother's name and preserving her dignity.
I'm learning that how I communicate is more important than what I have to say especially when you are dealing with dementia.
Laughing until you cry feels better than crying until someone can make you laugh.
This illness will reorganize your priorities in life and probably for betterment.
I've learned how to love the memories of who my mother was while learning to offer my love and understanding to who she is becoming.
This illness will shake your belief system...you just need to believe you will get through it.

By a son

Everyday Tips for Persons with Dementia

Ideas gathered during Early Stage Information Series

Don't blame yourself or others for mistakes
Be involved with planning for future needs
Instead of driving, walk, ask for help from family/friends/neighbours, take a taxi or bus
Realize it is not your fault
Use a big calendar
Write everything down (i.e. phone messages)
Know what's really important in life
Read things more often (i.e. recipe) to make sure
Use more simple recipes
Use humour and laughter!
Buy less expensive cookware (just in case) and eat out if its easier or get Meals on Wheels
Enjoy have children around and your pets
Have medications organized and labeled clearly
Go for a walk to "clear the air" and reduce stress
Know what you limits are

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